Friday, April 12, 2013

In Illness and in Health

I have a chronic illness.  I've tried to write a story about it for a long time.  And for a long time it was impossible.  I was too bitter, too exhausted, too raw on the subject to approach it honestly.

This is my expression, as true as I can make it, of what it's like.

~~~

Suspension

Rebekah ate her cereal in silence, a small bowl sweating droplets onto her hand as she ate slow mouthfuls of whole grain oats and corn starch.  She put it on the counter half-finished.

Another bowl from the cabinet.  His favorite brand of cereal, a half cup of milk.  She put a couple slices of toast in the toaster.  A spoon placed gently on a napkin folded in the shape of a heart.  No smile this morning.

It was the eighteenth she had made.
*

The room was bright and clean, her side of the bed smoothed down, his side barely disturbed.  She sat next to him, and kissed his cheek.

“Good morning, Isaac.  Time for some breakfast.”

He was a large man.  She pulled him onto his back, leaning his weight over the edge and onto her stomach.  Her face turned red as she tried to sit him up, his head slack on its neck.  Isaac’s torso leaned over the side, and his body tumbled against her.  She fell back with a surprised shout, and he crashed down, striking his face against the night table and then the floor.

“Isaac!  Oh my god, Isaac!”

His eyes stuttered open and he groaned as blood pooled around his nose and mouth.

*

“Kleine-Levin?” the paramedic stared at her blankly.

“Yes,” she swung her coat over her shoulders, and grabbed her purse, “A form of hypersomnia without any real treatment.”  She looked back at the bedroom door and her hands trembled, “A broken nose?”

“That’s right, ma’am.  We’d like to admit him for observation, run a few tests to rule out any other form of trauma to the head.”

“Oh.  Um.  Okay.  I guess that’s for the best.  You’ll take him in the ambulance?”

“We can keep him more stable.  Make sure he doesn’t hit his head again,” the paramedic smiled at his wit.

Rebekah turned pale and nodded.  “I’ll pick him up after work then.  Lock the door behind you, please.”

“Ma’am?”

She left quickly, putting a door between herself and his protests.  His humor.  She got in the car and made it to the end of the block before her first sob.

*

Bared teeth in the elevator.  A knowing grin, strong cologne, leaning close enough for the smell to linger.

“Rebekah!  You look amazing.  Isaac still sleeping on the job?”  He laughed then winked.  To show he was joking.  He sobered when she didn’t respond.  “Rough morning, huh?”

She nodded.  And watched him nod, too.  Because he understood.

“It’s an awful situation.  For all of us.” 

He hugged her.  Too tightly.  Too long.  He pulled away but left a hand on her shoulder, “It’ll be better soon.” 

A digital bell rung and he left, leaving his cologne to pollute the elevator.  Rebekah felt herself shaking and leaned against the side.  She closed her eyes and took a deep breath.  The wall smelled of dust and the metal beneath it.  A motor hummed somewhere above or around her, winding her upwards. 

Alone.  A soft hum and air too thick with a man’s perfume.  For all of us.  Her breath caught once before she forced her heart to slow.  Soon.  Everything happened ‘soon’.  A hug that she needed.  That she had wished lasted longer. 

She hated herself.  That her only comfort came from a would-be Casanova.

Another muted ding and she stepped onto her floor.

The hall smelled like carpet and coffee.  Fluorescent lights, clean white walls, and cheap oil paintings picked for looking more expensive than they were.  Her heels tapped at the thin layer of nylon covering the floor; a soft a cappella voice in a gallery of silence.

A glass door, set in aluminum:


Castella Sales and Contracting

“Good morning, honey,” said Pam.  The receptionist.  “Ben asked you to stop by his office.”

Rebekah swore softly, “Do I look alright?”

Pam looked sympathetic, “Not too bad, sweetie.  Stop by the bathroom and clean yourself up.”

“Thanks.”

“Hang in there, Bekah.  I’ve got my whole church praying for you and Isaac.”

A muttered gratitude.  God.  A church-ful of prayer and her husband won a broken nose. 

*

“Rebekah.  Please come in.”

Benjamin Castella.  Her boss.  A serious man in his fifties.  He had built the business, and she was one of twenty employees.

“I’m sorry I was late, it won’t happen again.”

He raised an eyebrow, “If something happens at home you’ll be late,” he shrugged, “I need to talk to you about something else.”

“Oh.”

Folded hands and a careful breath, “You haven’t met your quota.  Not even half.”

She held her breath.

“I need you to try to do better.”

“Better, sir?  How am I supposed to do better?  My husband is unconscious most of every day.  I have to wake him up to feed him, to clean him.  I have to take him to the hospital if something is wrong.  I have to pay all our bills on just my paycheck.  I’m trying so hard to get clients and make contacts, but – ˮ

“Rebekah.”

She pushed a breath out and tried to keep herself from crying.  “Sorry.”

“When you first told me of your husband’s condition, what did I do?”

“You gave me a raise, and I so appreciate – ˮ

“And a week of paid vacation.”

“I know and – ˮ

He raised a hand and she fell silent, “Is your husband stable?”

“Yes.”

“Is there anything more you can do to improve his condition?  Is there anything you need?”

She clasped her hands tightly, “I don’t think so.”

“If anything at all changes and you need time off, let me know and I’ll arrange something for you.  If you need more money, I might be able to give you another raise, or maybe even a loan.”

“There’s no need.”

“I’m glad to hear it,” he sighed, “When you’re here, I need you to be here.  I don’t mind giving you extra time, but I can’t pay employees if they can’t do their jobs.”

“Are you going to fire me?” She whispered.

“No.” His voice was firm, “This isn’t an ultimatum.  This is a reminder.  You’re here to work.”

“I’m trying, sir.”

He fell silent.  “My mother got cancer when I was eighteen.  My father got angry, started some fights and was fired.  He left my mother alone with the bills and three children.  She couldn’t work.  So I did.”

Crying again.  She kept her eyes on the floor.  “How?”

“You leave it at the door.  Focus on the moment, and tune everything else out.”

“I don’t know if I can do that.”

“You’ll find you can.  Most people do eventually.  Big things or small, shit happens, and we have to live with the mess.”  He paused, his eyes distant, then glanced at a folder on his desk, “I’m lowering your quota by twenty-five percent.  We’ll reevaluate next month.”  He met her eyes, “Do you think you can do better?”

“I’ll do my best.”

“Good.”

*

She drove to the hospital after the sun had set.  A few new contacts, a couple good sales.  Ben would be satisfied.  Shit happens.  Like cancer.  She didn’t turn on the radio, didn’t roll the windows down.  The air in her car tasted stale, but she failed to notice.  Red lights, green lights, a few stop signs, and she saw none of them.  Slept walked wide awake until she pulled into the parking garage.

A few signed forms and the smell of disinfectant.  His room was dimly lit, and he was asleep.  The nurse left them alone, and she sat beside her husband and took his hand.

“I love you, Isaac.

“It was hard today.”  Her eyes were wet again, “I don’t know how much longer I can do this.  I thought – ˮ her breath caught, “I thought you would be the strong one.

“I thought we’d always have each other.  That no matter what would happen you’d be there for me.  But you’re not.  It’s like you’re gone.  Like you’re dead and I – ˮ

She sobbed, “I need you here.  With me.  I don’t want to watch you sleep anymore.  I don’t want to come home anymore, I don’t want to go out.  It’s like everything I loved about my life was suddenly arrested in motion, suspended in time while the whole world keeps rushing on.

“I want you back.”  She put her forehead on his hand, “Please come back.”

He caressed her face.  “I’m here, love.”

She looked up.  His eyes were drowsy, but alert.  “You’re awake.”

He was crying, “I’m so sorry.”

Rebekah climbed into bed with him, and they held each other.  “I’m so very sorry I can’t be there all the time.”  He said again.  And again.

“It’s all right,” she said.
     
                      But it wasn’t.

*

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